I don't have any kids. I don't know anyone with Rett Syndrome. It hasn't affected my life and up until recently, I didn't even know it existed.
But that doesn't mean I can't tell people about it now.
Elizabeth Halford is a photographer I admire. She is honest, quirky and her daughter has Rett Syndrome.
Her website, Gracie for Rett opened my eyes to this development disorder that affects 1 in 12,000 girls.
I don't presume to know what she goes through, or what other families go through, or even what those brave little girls who have this disorder go through. But if this blog post gets seen by someone, who emails it to someone else, who then tweets it... well, I guess it's a small thing in the scheme of things.
Elizabeth has got some great information on her website, so please, have a read and pass it along!
Tweet it, email it, pin it - anything to get the word out!